Benefits for children with disabilities and their parents in 2018: benefits, guardian rights

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Raising a baby with disabilities becomes a difficult test for the whole family. The costs of medical care and rehabilitation of the baby in society are increasing. To solve this problem, the Russian government provides benefits to children with disabilities and their parents in 2018. Volumes and types of social assistance are regulated by federal and regional legislative acts..

Who are the children with disabilities

This category includes minor citizens with severe physical, sensory, mental or mental disabilities. They can be congenital or caused by any disease. In 2018, benefits can be used for children with disabilities and their parents after the official recognition of disability by an authorized medical institution.

Conditions for the recognition of childhood disability

The state regulatory documents contain criteria for recognizing a baby partially or completely incompetent. Parents or guardians are required to contact the nearest medical institution at the place of registration for a medical and social examination. Disability recognition is carried out if the baby’s health condition meets 2 of 3 conditions. Criteria for recognizing a disabled person:

  1. Dysfunction of certain organs or systems due to birth defects, serious illnesses or injuries.
  2. Limitation of life. A minor partially or completely loses the possibility of self-care, has problems with controlling behavior, self-relocation, communication, etc..
  3. Strong need for social support and rehabilitation.

Documents for obtaining the status of a disabled child

Just going to a medical and social examination will not work. It is necessary to get a referral from the organization that provides medical and preventive care to the baby. It does not matter whether it is public or private. At the place of registration, the direction may be issued by an employee of the social welfare body or the pension fund. Assignment of the status of a disabled person is carried out on the basis of the following documents:

  • directions from the attending physician;
  • certificates confirming the presence of health problems in a minor;
  • birth certificate.

Girl in a wheelchair

Medical and social expertise

The event can be held at home, if the minor cannot be brought to the bureau for health reasons, in a hospital where the baby is being treated, in absentia by decision of the bureau specialists. A pension is granted after passing a medical and social examination. During the procedure, a protocol is drawn up, which describes in detail the state of the citizen. The act contains the following information:

  • a conclusion on the types and severity of functional disorders;
  • cause of disability;
  • information about the documents that parents will receive after the examination;
  • data on the documents that served as the basis for the decision;
  • consultants’ opinions.

The specialists of the bureau make a decision on the basis of the submitted documents and a visual assessment of the patient’s condition. There must be an extract from the medical history along with the results of the examinations. Specialists may suspend medical and social examination. This happens if an additional examination of the minor is necessary to draw up a report. If the decision is positive, an extract from the act of socio-medical examination.

Regulatory framework

Benefits are provided in accordance with federal law (Federal Law) No. 181. It discusses the key points of social protection of people with disabilities, the procedure for conducting medical and social examination, especially the development of individual rehabilitation programs and the provision of outpatient care. The size of payments is regulated by Federal Law No. 178, 213, 388.

What is required for a disabled child from the state

For minors with disabilities, the government pays the maximum social pension. After reaching 18 years of age, a disability group is established, so the amount of benefits varies. Regional authorities may provide children with disabilities with additional financial and social assistance. The following benefits are provided at the federal level:

Payout name

Periodicity

The size in rubles

Monthly cash payment (EDV)

Monthly

  • 1478.09 + 4.1%;
  • if you refuse the set of social services, it will be 2527.06 + 4.1%.

Drugs and medical supplies

Monthly

811.55

To purchase vacation packages in a sanatorium

Monthly

1505.64

Free travel in any form of transport

Monthly

116.04

Social pension

Monthly

12557

Social pension

From 2018, the amount of monthly payments will increase to 12557 rubles. When calculating a social pension, the territorial coefficient is taken into account. The maximum value of this parameter is 2, and the minimum is 1.15. After filling out the declaration, a social pension is accrued either until the citizen comes of age, or until the expiration of the disability, if the status was assigned for 2-3 years.

Monthly cash payment (EDV)

The size of this benefit is determined by whether the guardian decided to keep the set of social services or refused it. The minimum value of EDV is 1,478.09 rubles, and the maximum is 2,527.06 rubles. If you retain the right to travel by rail for free, the benefit will be 2402 rubles. If the parents of a disabled person will not refuse medication, EDV will be 1719 p.

Medicines and medical supplies

Benefits are provided for the purchase of certain medicines that may be required for prosthetics or planned treatment of minor patients. By order of the Ministry of Health of the Russian Federation No. 117, guardians will be able to receive free strollers and some orthopedic orthopedic products for their wards in order of priority.

Pills and capsules

Vacation packages for spa treatment

In 2018, the list of incentives for disabled people and their parents included discounts on the purchase of wellness tours. The standard duration of the spa treatment of legally incompetent minors is 21 days. If a citizen received a disability due to spinal cord or brain injuries, the duration of therapy is increased to 24-42 days.

Free use of public transport

Disabled minors can get a 50% discount on the cost of travel on water, air, rail, road intercity transport once a year. On city buses, minibuses, trolleybuses disabled person will be able to ride for free. Parents or legal guardians of a minor accompanying him are given the same right.

Benefits for admission to a university or college

If a child with a disability has passed the exam well, then he will be enrolled out of competition in an educational institution. He will have to go to study with other students, unless otherwise provided by the rules of the institution. Preference is given once, so the future student must weigh all the pros and cons of the selected organization, assess the workload before submitting documents for admission. Benefits that can be used upon admission:

  • admission to the faculty without entrance exams;
  • when calculating the same number of points, students with disabilities are enrolled in the first wave;
  • with positive exams, the person is accepted according to the existing quota.

Disabled child care allowance

Guardians of a minor disabled person often cannot go to work: they need constant care, which can be provided by an idle parent or nurse. There is often not enough money for professional medical staff, so one of the family members begins to care for the legally incompetent. In order to support such people, the government decided to add the allowance for caring for them to the available benefits. A citizen should apply to the pension fund (PFR) with the following documents:

  • a certificate from a socio-medical examination, which is proof of disability;
  • written application for benefits;
  • photocopy of the identity document of the applicant;
  • a written statement with consent to care for the legally incompetent;
  • a certificate from the FIU confirming the absence of additional payments;
  • certificate from the employment center confirming the status of unemployed.

The basic amount of the allowance is 5500 rubles. According to the schedule, it is paid once a month. If another person is taking care of the minor, then the state transfers 1200 rubles per month to him. In case of partial or complete recovery of the baby or the parent goes to work, payments cease. In some regions, the allowance is compared with the cost of living. For example, in Moscow, instead of 5500 rubles, they pay 12000 rubles.

Who is eligible to receive

Parents, official guardians, and adoptive parents of a disabled person can apply for financial assistance. The beneficiary must be fully able to work. If he receives a category III disability pension, then he will not be paid the care allowance. No benefit is given to grandparents, who are the only guardians of a minor, receive a pension and do not belong to the category of the working population.

One-time cash payment in 2018

The value of this benefit varies every year in April. Payments are made by the FIU. Given that children are considered disabled, one of their parents or guardians can pick up the payment. According to preliminary forecasts, the amount will be increased by 4%, but the exact percentage for each disability category will be announced by the FIU immediately before indexation. When changing the status of a disabled person, the amount of EDV is automatically recalculated.

Cash payment

Benefits for mothers of children with disabilities

An employer cannot fire a woman who is self-caring for a legally incompetent person under 18 years of age. Until the disabled person reaches the age of majority, the mother may apply for up to 4 paid days off each month, regardless of whether she was earlier on maternity leave or not. This decree is valid in the city. Residents of the villages will be able to get only 1 unpaid day off. A woman has the right to receive alimony for the disabled upon reaching 18 years of age, to spend part of the money from the mother capital for treatment or adaptation of the baby.

Alimony for disabled adult children

Upon dissolution of the marriage, a constant payment of funds is provided in favor of disabled children, who, upon reaching the age of 18, are assigned the I category of disability. The amount of alimony is regulated by a joint agreement of the parties or by decision of the judicial authority. Biological parents will not be able to refuse to provide material assistance to the child. Cash is paid in favor of one of the spouses caring for a disabled person of group I for the following reasons:

  • health problems that prevent a citizen from finding a job;
  • lack of opportunities to receive money in other ways.

Maternal capital for social adaptation and integration in society

In 2018, benefits for children with disabilities and their parents apply to existing programs to support the birth rate of the population. Since 2016, the law has entered into legal force and it has become possible to use money that is part of maternity capital for the rehabilitation of minors with disabilities. The parent must first acquire the goods or services, retaining cashier’s checks, receipts or payment contracts, and then receive an act of verification of purchased products from the social security authority. To receive compensation, the following documents will be required:

  • a statement on behalf of the certificate holder;
  • SNILS;
  • certificate holder passport;
  • cash / commodity checks and other payment documents confirming the purchase of goods / services;
  • individual rehabilitation program (IPRA) of a minor with disability;
  • Act of verification of purchased goods or services
  • bank account details.

The documents listed above must be taken to the branch of the pension fund at the place of residence. After considering the application, the funds will be transferred to the account of the certificate holder within 2 months from the date of application. You can reduce the period for checking documents to 1 month if you submit an application on the official website of the Pension Fund through your personal account.

Benefits for parents of children with disabilities in 2018

Social assistance can be provided not only to a small citizen with a disability, but also to his family. Benefits for the legally incapacitated and their parents in 2018 are provided upon presentation of documents confirming the presence of health problems in the baby. They affect the work of adults, contribute to the solution of the housing problem and reduce the cost of rent.

Labor benefits

Persons raising a minor disabled person are entitled by law to refuse night shifts, business trips and overtime work. You can dismiss a parent only with the complete liquidation of the institution or if he expressed a desire to change the organization. The employee’s working hours must be specified in the contract. The government prepared the following labor benefits for families with disabilities:

  • provision of additional days off (4 days) per month,
  • part-time or part-time;
  • the inability to dismiss a working mother.

Girl works at a laptop

Early retirement

The rights of the parents of the legally incapable are indicated in the legislation of the Russian Federation. According to Article 1 of the Federal Law No. 440 “On Insurance Pensions”, persons who raise a citizen with disabilities since childhood can take advantage of preferential pension benefits, having received a long service bonus and other labor achievements. Old-age payments, one of the parents or adoptive parents will be able to receive before the generally established age:

  • father after reaching 55 years with an official work experience of at least 20 years;
  • mother after reaching 50 years with an official work experience of at least 15 years.

The decisive factors for early retirement are only 2. The first is recognition as a disabled person under 18 years of age or after adulthood with the mark “childhood disability.” The length of time spent on disability does not matter. The second is to raise a child up to the age of 8. Those parents whose children have been granted a disability for 1-2 years, but then was removed due to remission of the disease or improvement in the health status of the baby, can apply for early retirement pension..

PIT tax deduction

In 2018, citizens can also take advantage of benefits for children with disabilities and their parents after paying taxes. Under article 27 of the Tax Code of the Russian Federation, persons raising a legally incompetent citizen may receive a tax deduction equal to 12,000 rubles. A similar tax exemption applies to parents whose children study up to 24 years of age at full-time university and have a disability of I or II group.

If guardians are involved in the upbringing of minors, then the amount of the NFED deduction is reduced to 6,000 rubles. The privilege cannot be used if the income of the parent or adoptive parent is more than 350,000 rubles. Only one citizen involved in raising a minor can receive a deduction. Families with several children with disabilities receive money for each ward.

The right to improve living conditions

Benefits for families with disabled children include housing from the state. Preference is given to adults raising a child with severe chronic diseases and the officially established need to improve housing conditions. The area norm is established by the legislation of the region where the family lives. Children with the following ailments can get an additional 10 m2:

  • multiple skin lesions with abundant discharge of pus;
  • leprosy;
  • HIV infection;
  • rehabilitation period after bone marrow or internal organs transplantation;
  • diseases of the musculoskeletal system with persistent dysfunction of the lower extremities or complete absence of legs, requiring constant use of wheelchairs;
  • mental illnesses (schizophrenia, epilepsy, bipolar personality disorder, etc.) requiring mandatory follow-up;
  • severe renal lesions;
  • active forms of tuberculosis of any organ;
  • tracheostomy temporary or lifelong to eliminate airway obstruction;
  • fecal, urinary and vaginal fistulas;
  • lifelong use of a catheter for artificial excretion of urine from the body;
  • cavities in the bladder, not surgical correctable urinary incontinence, unnatural anus;
  • neuromuscular malformations of the face and skull with impaired breathing, chewing, and swallowing;
  • lesions of the nervous system, provoked by injuries of the spine / brain, the formation of cavities in the spinal cord, vascular sclerosis.

Priority right to receive a land plot

The property issue is very acute for families raising a minor with a disability. Even babies with problems of verbal perception need special care. In order to improve the living conditions of such families, the government developed a bill allowing them to receive land out of turn. Citizens can use them for building a house or gardening.

Land plot

Compensation of utilities and overhaul services

In 2018, children with disabilities and their parents will be able to take advantage of the benefits when paying for utility bills. At the initiative of the government, 50% of the payment will be returned to such families. When the rate for utilities increases, the amount paid from the budget is automatically indexed. The compensated period is 12 months, and then you need to submit documents again.

Social support measures for children with disabilities

Representatives of the administration of various cities of Russia, together with the country’s parliament, regularly allocate a certain amount of funds from the budget to provide material assistance to underage citizens who have received disabilities. Social support measures can be federal and regional. The former operate throughout the country, while the latter are designed for a specific area. Federal measures of social support include:

  • free admission to kindergartens;
  • free meals in schools;
  • home education if a minor cannot attend school;
  • priority for free places in kindergartens;
  • individual mode of passing uniform state exams.

Regional benefits for children with disabilities and their parents in 2018 in St. Petersburg, Moscow, Orenburg, Murmansk and other cities of the Russian Federation. Thanks to them, guardians will be able to get free technical rehabilitation equipment, corrective glasses for eyesight problems, financial assistance for the purchase of children’s orthopedic costumes and partially reimburse the cost of buying low-protein foods for phenylketonuria.

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